Had ulcerative colitis. Went about a month on Gatorade and clear vegetable broth. Another month or two on TPN after surgery with very little to no veggie broth.
Ha, oh man. When I finally got unplugged from everything, about two weeks later, I sorta sprinted up a small flight of stairs and felt every muscle in my legs tearing. It was a very strange and uncomfortable feeling. It probably hurt a lot but they had me on some gnarly painkillers. I did feel it the next day though when I got home. That was about 13 years ago. I hope they have better treatments for it now than surgery. It seemed like a better option than Remicade at the time. Oh well, what’s done is done. Basically back to normal after all this time.
I hope you don’t. In my case nothing helped so I had my lower intestine removed. The made a facsimile with a section of small intestine and re-plumbed me. It was during that recovery period that I went on TPN to effectively reduce the usage of my digestive system.
TPN is Total Parenteral Nutrition. Basically it’s a large bag of glucose, lipids, vitamins and minerals that is fed through a PICC line (in you upper arm) directly above your heart for thorough dilution and distribution through your bloodstream. An external peristaltic pump doses it into you throughout the day. It’s a trip, albeit cumbersome. Oh, and it does spikeTF out of your blood sugars so you have to take insulin during the process, which sucks.
The surgery did, but it was a long recovery period. I think it was three months with a temporary colostomy bag while my intestine healed and then at least a year for my body to get used to the new setup. After about 5 years I noticed that I was closer to normal, or as normal as you can be after getting a j-pouch. But it’s better than going through continued episodes. I don’t think I would have survived more than a couple additional bouts. Plus living with UC really increases your risk of colorectal cancer. Fun stuff
Yeah, this was the fourth recurrence of it and by the time I went into the hospital I had lost nearly half of my blood or something. I think I needed four pints iirc. I don’t remember exactly, I was near dead. Kinda sucked. After surgery and a year of healing I was able to regain the weight it and get back in shape. Haven’t had another issue with it since. Plus I don’t have a lower intestine, so no colon cancer! Silver lining and all.
Sounds like the J-pouch is also working out well, thank goodness. I’m sorry you went through that. Makes my own recent ordeal look like easy street in comparison.
Had ulcerative colitis. Went about a month on Gatorade and clear vegetable broth. Another month or two on TPN after surgery with very little to no veggie broth.
Went from 175 to 115. 0/10 would not recommend.
I have UC too and was put in the hospital for 5 days on a broth diet. It was weird seeing how skinny my legs became.
Ha, oh man. When I finally got unplugged from everything, about two weeks later, I sorta sprinted up a small flight of stairs and felt every muscle in my legs tearing. It was a very strange and uncomfortable feeling. It probably hurt a lot but they had me on some gnarly painkillers. I did feel it the next day though when I got home. That was about 13 years ago. I hope they have better treatments for it now than surgery. It seemed like a better option than Remicade at the time. Oh well, what’s done is done. Basically back to normal after all this time.
Wow that’s amazing. I think I might have UC. Did it help your symptoms?
What’s TPN?
I hope you don’t. In my case nothing helped so I had my lower intestine removed. The made a facsimile with a section of small intestine and re-plumbed me. It was during that recovery period that I went on TPN to effectively reduce the usage of my digestive system.
TPN is Total Parenteral Nutrition. Basically it’s a large bag of glucose, lipids, vitamins and minerals that is fed through a PICC line (in you upper arm) directly above your heart for thorough dilution and distribution through your bloodstream. An external peristaltic pump doses it into you throughout the day. It’s a trip, albeit cumbersome. Oh, and it does spikeTF out of your blood sugars so you have to take insulin during the process, which sucks.
Did it help?
The surgery did, but it was a long recovery period. I think it was three months with a temporary colostomy bag while my intestine healed and then at least a year for my body to get used to the new setup. After about 5 years I noticed that I was closer to normal, or as normal as you can be after getting a j-pouch. But it’s better than going through continued episodes. I don’t think I would have survived more than a couple additional bouts. Plus living with UC really increases your risk of colorectal cancer. Fun stuff
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Yeah, this was the fourth recurrence of it and by the time I went into the hospital I had lost nearly half of my blood or something. I think I needed four pints iirc. I don’t remember exactly, I was near dead. Kinda sucked. After surgery and a year of healing I was able to regain the weight it and get back in shape. Haven’t had another issue with it since. Plus I don’t have a lower intestine, so no colon cancer! Silver lining and all.
Sounds like the J-pouch is also working out well, thank goodness. I’m sorry you went through that. Makes my own recent ordeal look like easy street in comparison.