This question comes from watching the TV right now, and they’re talking about Bruce Willis. I feel bad for him, I really do…
Bruce Willis apparently has what they call Frontotemporal Dementia. That’s a tounge twister mouthful for most average people, I can only assume Mr. Willis probably can’t even remember the name of his own condition…
Why isn’t there a ‘patient-friendly’ easy to remember name for disorders that literally affect a person’s brain and memory?
Like shit, I bet most people wouldn’t know what polytetrafluoroethylene is, but they gave everyone a simple name to know it by, teflon.
So, why don’t they have simpler terms for brain disorders so the suffering patient might be able to talk to their own doctor privately…?
But who does the patient need to communicate it to other than health professionals? Other people should be satisfied with a phrase like “dementia that causes me to behave different and/or have difficulty speaking” otherwise they are just going to have to look up the disease anyway.
FTD is a rare disease (meaning less than 65/100000 people get it in their lifetime) and there are thousands of rare diseases. Who do you propose should come up with simple names for all of these, teach these to all medical professionals and make sure all info online gets both the descriptive and simple name attached?? There are enough issues with terminology in the medical world as is, trust me.
Yeah I get you, ROTFLMFAO!
Oh, I meant LOL…
The internet has no shortage of creative yet simple three letter acronyms, what makes brain issues any different? If anything, people suffering brain issues should be the first to get simplified terminology.
Like, what if Mr. Willis was just an average everyday person, same issues, but wanting a second opinion from another doctor? Not saying the second opinion would or would not be any different, but how would a patient with brain/memory issues even explain him/herself privately?
Not everyone with brain issues even has anyone to help them properly.
I am very familiar with medical terms and even I ask the doctor to write down the specifics of my diagnosis when I want to seek a second opinion.
Guess you never had both your mental doctors die huh?