In the 1990s, a small circle of intersex people came to know one another. They met face-to-face and connected over the internet (then a novelty). As they shared life experiences, medical records, and perspectives on the injuries and neglect they endured, a consensus quickly arose. They found shared struggles, caused not solely by widespread ignorance of ordinary human variance in reproductive development, but also by the ways they were known over.
At worst, this knowing over meant surgeries and other treatments carried out with little regard for their consent, then usually concealed from them. Medical jargon and vague euphemism had been layered along with scar tissue. The truth of their treatments was left impossible for intersex people to reach individually — but was easily recognised when they gathered. Then, they could intuitively grasp the shared wounding and neglect that previously isolated intersex people (that had caused them to know themselves only as medical freaks — best off corrected and hidden away — and not as their own category of human, who might understand themselves).
Intersex advocates first focused on dialogue, both internal and external, by raising consciousness at small community meetings and on purpose-made web forums and developing connections with allies in feminist scholarship and the LGBTQ+ movement. Intersex advocacy of this era had an unmistakable imprint of both the feminist and lesbian and gay movements. Intersex people drew slogans, strategies, insights, and approaches from earlier twentieth-century counterculture – and merging with the prevailing provocative style of ’90s queer campaigners.
After just three years of underground consciousness-raising organisation, intersex advocacy took to the streets (first in Boston in 1996, then quickly worldwide). Their first protest featured signs reading “SILENCE = DEATH”. Just two intersex demonstrators were flanked by transsexuals, holding a flamboyant picket to confront doctors with “feedback” from those who they’d harmed. From 1996 to today, advocates began confronting the professionals responsible for the harms done to intersex children, with the hope that future generations could be spared the developmental injuries that so many in the movement had endured.
for conservatives it’s only wrong if the child can consent